Resources

Valuable resources, information, and support services about cancer, sarcoma cancer, and disfigurement

1 Up on Cancer
Provides articles for survivors covering topics such as nutrition, exercise, promising treatments, and stress management, as well as articles on organizations doing incredible things for survivors, and survivors doing incredible things for survivors.

AboutFace USA
AboutFace USA is a nonprofit support network for people with facial differences.

Adult Bone Cancer Survivors
Adult Bone Cancer Survivors is dedicated to providing hope and support
for treatment, recovery, and life beyond. The site is full of survival
stories and offers a friendly support group.

Dr. Gary Burget
Pre-eminent aesthetic facial reconstructive surgeon, who performed six of my nasal reconstructive surgeries.

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer, through research, education, advocacy and service.

Amschwand Sarcoma Cancer Foundation
The Amschwand Sarcoma Cancer Foundation’s mission is to educate the public about sarcoma, supporting those with the disease, and encouraging sarcoma-specific research.

Association of Cancer Online Resources
ACOR is a unique collection of online communities designed to provide timely and accurate information in a supportive environment.

The Cancer League, Inc.
The Cancer League is a San Francisco Bay Area non-profit organization dedicated to raising money to support cancer research and support services.

The Cancer Support Community
A free program of emotional support, education and hope for people with cancer and their loved ones.

The Cancer Support Community – San Francisco East Bay

The Cleveland Clinic Journal of Medicine
Great paper here titled “Considerations Surrounding Reconstruction After Resection of Musculoskeletal Sarcomas.”

Custom Prosthetic Designs, Inc.
A company specializing in facial prostheses resulting from trauma, disease and congenital defects.

The Liddy Shriver Sarcoma Initiative
Dedicated to increasing public awareness and research for sarcoma.

Fibrosarcoma of Bone: Review of A Rare Primary Malignancy of Bone, by Jeffrey E. Krygier, MD and Valerae O. Lewis, MD

National Cancer Institute
The National Cancer Institute leads the Nation’s fight against cancer by supporting and conducting ground-breaking research in cancer biology, causation, prevention, detection, treatment, and survivorship.

National Coalition for Cancer Survivorship
The National Coalition for Cancer Survivorship (NCCS) is the oldest survivor-led advocacy organization working on behalf of people with all types of cancer and their families.

Visitors to NCCS’s website will find educational resources to help them live with, through and beyond cancer, including the award-winning Cancer Survival Toolbox and Essential Care, a comprehensive guide to symptom and pain management.

The Sarcoma Alliance
The mission of The Sarcoma Alliance is to guide, educate and support adults with sarcomas, as well as their family, friends and caregivers.

The Sarcoma Foundation of America
The Sarcoma Foundation of America’s mission is to increase research efforts toward finding the cure for Sarcoma.

Support for People with Oral and Head and Neck Cancer(SPOHNC)
A patient-directed, self-help organization dedicated to meeting the needs of oral and head and neck cancer patients.